Living independently with muscular dystrophy
This guest blog is written by Rose Lawy, and tells a bit about how her disability first appeared, how it has developed – and how she goes about maintaining her independence.
For me, as someone with muscular dystrophy, a degenerative muscle-wasting disease, living independently has, paradoxically, meant that I have needed to recognise when I am dependent in order to be able to live an independent life.
The type of muscular dystrophy I have is facioscapulohumeral. It affects all voluntary, skeletal muscles, but to varying degrees in different people. In my case my face is mildly affected but it is severe in my arms and legs as well as my back and abdomen, and over the years I have made many adjustments in the way I live. Read the Blog Independent Living